Our Mission
We are a unique UK based International IIH Support Organisation who are part of the IH Brain Pain Team for the IH Research Foundation. We help sufferers of Idiopathic Intracranial Hypertension adapt to life with IIH, by providing constructive and helpful advice.
Although we do offer information on the various topics from authorities on IIH, we primarily aim to help achieve a more positive and productive life with this condition
We are passionate and dedicated to raising awareness and funds for IH Research.
We are in Partnership with the Brain and Spine Foundation, Rare Disease UK and Rare Disease Day USA and we are also a Cure The Process Campaign Partner. We strongly advocate and encourage support for these organisations.
We will treat you all as individuals with individual needs.
We will try to reply to your posts as soon as we can.
We will treat you all with respect and understanding at all times.
We will ensure that any information provided is from reputable sources.
We will help you to develop strategies that will help give you a better IIH life, using constructive advice based on experience and success
Why You Should Care
IIH can manifest in any age, gender, creed and body type, it is non discriminatory, which means awareness and research are very necessary to all.
Sufferers are often misunderstood and very isolated because IIH is an invisible illness. It is not yet recognised as a chronic illness, with awareness and funding for it overlooked.
The IIH community is now of a proportion that we can generate awareness and fundraising to help our cause.
I was so happy to find this site. It really helps to read other peoples experiences with this. Amberly
Thank you for having a place where I can find help and ask questions of those who have experienced this condition before me. Heather
This is a wonderful site. I have spent several hours reading over the info on here. Jenny
I'm SO glad I came across this forum!
Thankyou so much for your support, it really does mean so much to me! Sarah
I am so glad I found a support forum because for a while there I felt like I was the only person in the world with this condition! Marissa
I am doing what I can now to learn as much as I can on IIH as well as the treatments used and also thankful to have found a support system for those of us who suffer from it. Kristy
We are helping sufferers of IIH to cope better, feel better and have a more positive attitude and outlook to living with this disease.
We provide information and advice based on proven techniques and successful outcomes.
